Legislation

Guidelines

 

OECD
 

OECD Guidelines on Human Biobanks and Genetic Research Databases, 2009

 

Guidelines for Patenting Genetic Inventions, 2006

 


HUGO
 

The Human Genome Organisation (HUGO). The HUGO Ethics Committee, Statement on Human Genetic Databases (London, December 2002).

 


UNITED NATIONS
 

United Nations Educational, Scientific and Cultural Organization (UNESCO). The Universal Declaration on the Human Genome and Human Rights (Paris, 11 November 1997)

 

United Nations Educational, Scientific and Cultural Organization (UNESCO). International Declaration on Human Genetic Data, UNESCO

 

United Nations Educational, Scientific and Cultural Organization (UNESCO). Universal Declaration on Bioethics and Human Rights (19 October, 2005)

 


CIOMS
 

Council for International Organizations of Medical Sciences (CIOMS). International Ethical Guidelines for Biomedical Research Involving Human Subjects (CIOMS: Geneva, November 2002)

 


WMA - World Medical Association
 

World Medical Association (WMA). Declaration of Helsinki, 164, amended in 2000, clarification notes 2002, 2004.

 


European Society of Human Genetics - ESHG
 

Data storage and DNA banking for biomedical research: technical, social and ethical issues

 

Patenting and licensing in genetic testing: ethical, legal and social issues