Privacy

2009

BLYTH E., FRITH L., Donor-Conceived People’s Access to Genetic and Biographical History: An Analysis of Provisions in Different Jurisdictions Permitting Disclosure of Donor Identity, 23 Int. J. Law Policy Family, 2009,  pp. 174-191

2008

KIMBERLY Y.J., Department: Heads Up: The GINA Is Out of the Bottle: the Genetic Information Non-Discrimination Act of 2008, 53 B.B.J., 9 (2008)

2007

CAGGIA F., Il trattamento dei dati sulla salute, con particolare riferimento all’ambito sanitario, in Cuffaro V., D’Orazio R., Ricciuto V. (a cura di), Il codice del trattamento dei dati personali, Torino, 2007, 405

LAURIE G, Genetic Privacy. A Challenge to Medico-Legal Norms, Paperback edition, Cambridge University Press, Cambridge 2007

 
MCGREGOR J.L., Population Genomics and Research Ethics with Socially Identifiable Groups, 35 (3) J. Law Med. & Ethics 356 (2007)

2006
 
AA.VV, Policy Papers on Biometrics & Genetic Data, made available by the European Commission, Department of Justice and Home Affairs (2006-2000)

BREGMAN-ESCHET Y., Genetic Databases and Biobanks: Who Control Our Genetic Privacy?, 23 Santa Clara Computer & High Tech. L.J., 1 (2006)

LORD D.B., The HIPAA privacy rule and medical records discovery, 30 AK Bar Rag, 6 (2006)
 
 

2005

GERARDS J. H., HERINGA A. W., JANSSEN H. L., Genetic Discrimination and Genetic Privacy in a Comparative Perspective, Intersentia, Antwerp 2005

HONG H., Dismantling the Privacy Enforcement of the Privacy Act of 1974: Doe v. Chao, 38 Akron L. Rev. 71 (2005) 

LEVIN A., NICHOLSON M.J., Privacy law in the United States, the EU and Canada: The Allure of the Middle Ground, 2 UOLTJ 357 (2005)

2004

AA.VV, Human Genetic Testing: What Implications? Proceedings and Final Reports of the European Stakeholders’ and Citizens’ Conference on the 25 Recommendations by the European Commission’s Expert Group on the Ethical, Legal, and Social Aspects of Genetic Testing – Charlemagne Building, Brussels Belgium, 6/7 May 2004

D’ANTONIO V., I dati genetici, in Cardarelli F., Sica S., Zeno-Zencovich V. (a cura di), Il codice dei dati personali, Milano, 2004, 341

 
JOHNSTON C., KAYE J., Does the UK Biobank have a Legal Obligation to Feedback Individual Findings to Participants?, 12 Med. Law Rev., 2004, pp. 239 – 267

2003

BARISON S., Contratti nuovi, nuove teconologie e tutela della persona: il trattamento dei dati genetici nell’assicurazione di long term care, in Commandé G. (a cura di), Persona e tutela giuridiche, Torino, 2003, 217

DI CIOMMO F., La privacy sanitaria, in AA.VV., Diritto alla riservatezza e circolazione dei dati personali, (a cura di) R. Pardolesi, II, Milano, 2003, 249

2002

ANDERLIK M., ROTHSTEIN M., The Genetics Revolution: Conflicts, Challenges and Conundra: Article: Dna-based Identity Testing and The Future of The Family: A Research Agenda, American Journal of Law & Medicine, 215

LAURIE G., Genetic Privacy, A Challenge to Medical-Legal Norms, Cambridge University Press, 2002, 304

LOWRANCE W., Privacy and the Secondary Use of Data in Health Research, pubblicato per The Nuffield Trust, 2002 (2002)

2001

BELL D., BENNETT B., Genetic Secrets and the Family, 9 Med. Law Rev. 2001, pp. 130-161

BRADBURN N., Medical privacy and Research, 30 J. Of Leg. St., 687 (2001)

DUNKEL Y.F., Medical Privacy Rights in Anonymous Data: Discussion of Rights in the United Kingdom and the United States in Light of the Source Informatics Cases, 23 Loy. L.A. Int’l & Comp. L. Rev., 41 (2001)

2000

 JONATANSSON H., Iceland’d Health Sector Database: A Significant Head Start in the Search for the Biological Grail or an Irreversible Error?, 26 Am.J.L.and Med., 31 (2000)

LITMAN J., Information Privacy/Information Property, 52 Stan. L. Rev. 1283 (2000)

1999

CATALOZZI M., Dati sanitari e dati genetici: una frontiera aperta?, in Nuov. giur. civ. comm., 1999, I, 831

1998

DE CAMELIS P., Privacy e potere informatico – Cenni al trattamento dei dati inerenti la salute, in Rass. amm. sanità, 1998, 4

1997

HARRIS R.E., The need to Know Versus the Right to Know. Privacy of Patient Medical Data in an Information-Based Society, 30 Suffolk Univ. L. Rev., 1189, (1997)

1996

MELL P., Seeking Shade in a Land of Perpetual Sunlight: Privacy as Property in the Electronic Wilderness, 11 Berk. Tech. L.J., 1 (1996)

1993

ANNAS G. J., Privacy Rules for DNA Databanks: Protecting Coded “Future Diaries”, JAMA, 1993; 270(19): pp. 2346-2350

1992

CADIET L., La notion d’information génétique en droit français, dans la génétique humaine: de l’information à l’informatisation, in Knoppers B. M., Cadiet L., Laberge C. (sous la direction de), Édition Litec, Paris, 1992, pp. 41-75

1991

MCCAIN K.W., Communication, Competition, and Secrecy: The Production and Dissemination of Research-Related Information in Genetics, Vol. 16 n. 4 Science, Technology, & Human Values 491 (1991)

1985