Guidelines
OECD |
OECD Guidelines on Human Biobanks and Genetic Research Databases, 2009
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Guidelines for Patenting Genetic Inventions, 2006
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HUGO |
The Human Genome Organisation (HUGO). The HUGO Ethics Committee, Statement on Human Genetic Databases (London, December 2002).
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UNITED NATIONS |
United Nations Educational, Scientific and Cultural Organization (UNESCO). The Universal Declaration on the Human Genome and Human Rights (Paris, 11 November 1997)
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United Nations Educational, Scientific and Cultural Organization (UNESCO). International Declaration on Human Genetic Data, UNESCO
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United Nations Educational, Scientific and Cultural Organization (UNESCO). Universal Declaration on Bioethics and Human Rights (19 October, 2005)
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CIOMS |
Council for International Organizations of Medical Sciences (CIOMS). International Ethical Guidelines for Biomedical Research Involving Human Subjects (CIOMS: Geneva, November 2002)
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WMA – World Medical Association |
World Medical Association (WMA). Declaration of Helsinki, 164, amended in 2000, clarification notes 2002, 2004.
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European Society of Human Genetics – ESHG |
Data storage and DNA banking for biomedical research: technical, social and ethical issues
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Patenting and licensing in genetic testing: ethical, legal and social issues
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